Challenge accepted: An inspiring journey to support and raise awareness of younger onset dementia

3 October, 2024

The Walker family’s lives changed when Harvey was diagnosed with Early Onset Alzheimer’s.

Determined to make a difference, Jade Walker, and her sister Tara, took on the 100 Crunches a Day in July Challenge to show support for their father.

Their dedication not only led them to raise over $4,000, but also provided a platform for Jade to raise awareness about dementia. Younger onset dementia, which includes any form of dementia diagnosed in those under 65, currently impacts nearly 29,000 Australians. This number is expected to rise significantly, with projections indicating that over 41,000 Australians will be living with younger onset dementia by 2054.

Jade’s efforts have shone a light on this often-overlooked aspect of dementia, highlighting the urgent need for awareness, research, and support.

Finding support through Dementia Australia

When Harvey began showing small signs, like misplacing his keys and struggling to focus at work, he knew something was wrong. Soon after, he was diagnosed with Early Onset Alzheimer’s. This was particularly challenging for Harvey and his family, as his father and two aunts had both died from dementia.

Despite the diagnosis, Harvey was proactive. He sought specialist advice, adjusted his diet, and maintained his fitness as much as possible. Yet, as the disease progressed, it became clear that the family needed additional support. That’s when they turned to Dementia Australia.

Jade recalls how the team in Newtown provided guidance on everything from in-home care to navigating government services. “They just listened, understood, and wanted to help,” Jade says.

The emotional and practical support offered by Dementia Australia was a lifeline for the family, especially when they had to make difficult decisions, like suspending Harvey’s driving license as his condition worsened.

I am not sure where our family would be at this point of dad's disease without Dementia Australia.

Changes in Harvey’s condition

As time went on, Harvey’s condition deteriorated. Despite his efforts to stay active and engaged, the disease slowly took over.

By July 2023, Jade’s mum, Michele, had also begun to suffer due to the immense stress and exhaustion of caregiving. It became clear that Harvey needed more help than they could provide at home.

With the assistance of Dementia Australia and My Aged Care, the family made the decision to place Harvey in a care facility.

Jade’s mission to make a difference

Not only did Jade want to show support for Harvey, but she participated in the 100 Crunches a Day in July Facebook Challenge to raise awareness around younger onset dementia and much-needed funds for support services, resources and ground-breaking research.

Her favourite part was the sense of purpose it gave her. “It made me feel like people were getting information that normally they wouldn't know,” she reflects.

Jade would regularly post on her fundraiser page, documenting her journey throughout the challenge, sharing insights, and discussing the impact of dementia on families.

The challenge also became a family affair, with her sister Tara joining in, turning it into a shared effort of love and support for their father.

The importance of fundraising

Jade’s story is a powerful reminder of why fundraising is so critical in the fight against dementia. “I am not sure where our family would be at this point of dad's disease without Dementia Australia,” Jade says.

For anyone considering starting their fundraising journey, Jade offers this advice: “The more you put in, the more you get back.” She encourages others to share their stories openly and honestly, as this not only raises funds but also helps to build an engaged and supportive community.

Fundraising for organisations like Dementia Australia is not just about money—it’s about providing hope, support, and resources to families like Jade’s. Every action makes a difference.

By participating in online or in-person events, donating, or simply spreading the word, you can help ensure that families facing dementia have the support and resources they need.

Together, we can make a difference in the lives of those impacted by dementia. Join us for our 5km a Day Your Way challenge.