Anni Jennings

5km a day

My Activity Tracking

72
kms

My target 150 kms

I’m raising funds for people with dementia!

This November I’m taking part in the 5km A Day Your Way challenge with Dementia Australia. 

Each day in November I’ll be completing 5km a day, however I wish.

Every kilometre I complete, and dollar raised, helps support the 446,500 Australians living with dementia and the 1.7 million who care for them.

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Family part 1- Day11

Wednesday 11th Nov
I walked in two parts again today, I had to take the van (Morrison) in for repairs this morning, so I did part of my walk to pick her up and part if my walk when I got home to decompress from the service! 
I was intending to talk about family community or travel today, but when my sister came to my rescue to pick me up, I started pondering family in a different way, and those odd dynamics.
The van by the way has apparently had wires chewed by rodents, meaning that it’s impacting its drivability, so after being handed the keys and told the service all went well and they would need it back to fix the wires I cried. I explained i had initially rang to get it fixed and was upsold the service (that wasn’t actually due) but the guy behind the counter wasn’t being paid enough to care about my problems and insisted it would have to come back and I would have to rebook in two weeks because that’s all they had available. I through straining back tears explained I hadn’t wanted to pay for both and really only wanted it fixed - I appreciated the service but it hadn’t been my priority, to the stoney faced bloke. Fortunately another bloke who I guess had some authority, and empathy,  offered for me to leave the van, he would shuffle things around and he would fix it tomorrow. I left grateful but feeling burned.

Patrick was still working and off to play pool for the evening, I know he would have come got me, driven me home then go back into town again for pool without hesitation but I didn’t want him to have to so I called my sister. I was hot and bothered, from the first walk and my ordeal. She was able to pick me up and drive me home. 

I had been pondering today, on that first walk through town, part way around the lake, and around the old cemetery, about family and how we are still all in the same town. I had moved away for years but came back. And her we all were living so close to each other.

I pondered our dynamics, not being a particularly close family but somehow being pretty close because we’re family. There are individual connections and just connection because we’re related. I am obviously pretty close to Dad. I just always have been, he was always my go to and the one who just got me more than the others, we seemed to think in similar ways and have similar values on things. We both like literature, the arts, and had similar political views. Dad was always my confidant and I could talk to him about anything really. Sometimes, being a Dad, he’d try to solve it, sometimes he’d admit he was at a loss, and mostly he just listened. I traveled a lot with Dad, even living in Germany with him for 3 months, we would enjoy the same things, museums, art galleries, old churches, old buildings and beautiful places (gardens for me). He irritated the hell put if me, but he was my Dad and pretty cool to be around. In most family photos when I’m a kid, I’m hanging off Dad. 

I was a different kind of close to Mum, she wasn’t warm and fluffy, I never remember hugging her, or being hugged by her, I don’t recall her telling me she loved me or that she was proud of me, I expected this from a Mum so it was disappointing to me. I told her once I loved her, when I was 31, it felt super odd, and I had to get pretty drunk to do so (I told her a big secret I was carrying too so it wasn’t the full intention). I spent my childhood thinking I was a nuisance to her. But she was good at keeping me around, and she was good at showing her love through acts of service, they were often practical, but thoughtful I guess, and she was one who would throw money at problems once she had enough to do so (I more than often did not accept). Gardening was our connection, she taught me a lot about gardening just through osmosis! Watching her, listening, helping out and chatting, going to nurseries and visiting gardens. We visited family together and that just seemed like her thing. But I could never talk to her like I could with Dad. She would listen but always turn the conversation back to her and that frustrated me. I knew she could never give me the warmth I was seeking from her, but I kept trying, but it didn’t mean we weren’t connected, just not how I wanted to connect.

My siblings and I aren’t necessarily close and don’t always get along, but on the surface we do, we have our moments. But if you ask for something they will often be there. And well sometimes not, as I worked out when it came time to care for Dad. 

I am the eldest daughter and so where does the care fall- to me. The dynamics when a family member is unwell is odd, and I hear this from many people. Someone has to step up, and it feels like others take two steps back. But I think this is something to ponder tomorrow. 

I love my parents very much, they’re both odd characters, but Dad was very much the kind of Dad a lost, shy girl needed- most of the time. We drifted at times, and the last 20 years weren’t as easy to be connected to him. There were definitely times he was selfish like when he lived overseas when I was doing VCE., and he was always way too influenced by his girlfriends, sometimes good, and sometimes he would change to suit their beliefs (fortunately I was an adult by this time). At the end of the day we always stayed connected and he was always there for me. So I’m trying to be there for him and hear what he needs. 

Finding support - Day 10

Tuesday 10th Nov
I meandered my Uni walk again this morning, nice and early, the sun rising. It was warmer today, the day sounded, felt and smelt like spring. The sweet smell of the blowfly grasses and the sounds of nearly every bird waking up as I walked the track encompassed by bush. I was even greeted by Kookaburra's. I wish I knew what most of the other bird songs were, I know a couple of the main ones, but there's plenty I don't. 
This evening a couple of family members of residents at Dads nursing home had organised a get together for other family members to offer some support and catch ups. It was a lovely idea and one I thought would be so useful. It would have been great at the start of my journey as I just didn't know what I was doing, but I was also an emotional mess so I probably would have just cried the whole time! 
Tonight I was able to contribute a bit and talk without cracking up - not that anyone would have minded, they were all lovely and supportive. 
It was just really nice to hear that while everyones parent (or spouse) was experiencing dementia uniquely to them, there were many similarities and we all were going through very similar emotions and thoughts. I think just knowing this was helpful and supportive in itself. I already know one of the organisers of the group and am aware of her journey through her posts on facebook and chatting to her in the hallway at the home, so it was comfortable to go along, she's the type to make everyone feel comfortable. It's been helpful to have these conversations along the way. 
There were times I felt incredibly alone in this journey , particularly having to manage family dynamics that flared up like little spot fires everywhere throughout the journey. Some surprised me, and some were very expected, some positive, and some not so much. I was surprised by all Dads friends who reached out, not that I should have been because he was very cared about, but to suddenly be talking to these people about emotional things and have to relay what was going on just felt like a strange transition for me- someone who has always felt like an imposter in a grown up world. 
At the end of the day it has been an incredibly exhausting time, the emotion, the dynamics, the stress of the changes in moods and managing the behaviours, trying to get used to a whole new person in front of you, the incidents that happen like little falls, navigating appointments, the endless advocacy, the brain drain trying to work out paper-work, and then work full time, manage a family, and try to have a life. All the balls in the air! So the support is vital. 
I ditched a lot last year. I said no to invites and I cancelled plans, I didn't want to do any of this, but I was so exhausted there was nothing else I could do. 
I have recently being speaking with a couple of friends going through similar things, they are at the start of the journey, one sought me out to ask me a few questions about care homes and things, I felt honoured to help but also wished I'd done this too with someone, but I always felt too pushed for time. I had leaned heavily on a good friend for emotional support and she knew the journey well. Being able to talk with her was a godsend, she knew me, my family and my parents. But I don't have a lot of close friends, I've just never been that type of person. I get along with people but I never know how to turn that into deeper  friendships, so I tried not to over do it with this friend and keep my boundaries, however sometimes I just needed to vent. 
Carers Gateway were also a great resource for me as they supported with a few practical things; paying for counselling, massages, cleaning and just checking in offering guidance and empowerment. 
Dementia Australia would have been an amazing support too had I needed them. I actually worked for them very briefly (3 months) as a counsellor  just as I started this journey with Dad and had spent a lot of that time learning about dementia. I hadn't stayed in the role for long but the knowledge stayed with me and helped me recognise what was going on for dad, I think it would have passed me by otherwise. The timing was bizarre. I actually remember when I worked for them crossing the road to go to the Dr (it was across the road from work), and Dad was pulling up to the same surgery. I watched from a distance as he tried to navigate his way into a car park, backing in and out a few times. Just not something my dad had ever struggled with, my dad was an incredibly competent driver, cars being another love of his. That and a few other little things Like Dad starting to see things that weren't there, like a bird in a bush that clearly wasn't there but he was mesmerised by one day when Patrick and I were over for afternoon tea, all these little things together had me worried.  The level of knowledge I gained at Dementia Australia really helped  things fit into place. That is all knowledge staff there have at their fingertips, so I have a lot of faith that they are an amazing support for families and those diagnosed. 
You just can't do it alone.

Having a sense of uumour!- Day 9

Monday 9th Nov
Hopefully you got the Kath and Kim reference in the title today!
I did my walk in 2 parts today, the first one at sunrise was about 3.8 k's, then the next one was with some colleagues in the afternoon, to stop our 3pm slump, this  read to be about  1.6 K's but no-one really recorded it that well, so it was a bit of an estimate. 
This morning's walk was along a different road near home, I went to wander into a different part of the bush this morning, looking forward to the familiar stringy bark gums and braken, and knowing wild flowers would be out, but it was sadly fenced off.  This bit of land sold about a year ago, hopefully not to developers, but it's likely. The bush is fast disappearing and with it the native wildlife and flowers. We actually have koala's around here but no where near as many as there used to be apparently, there isn't much food for them.   The walk I did do in the end was along a country road of farm land, it was stunning if you look for photos with day 9 in the title.
After my last two posts with bits of heavy content I started pondering something a little lighter: how much of a sense of humour dad had, and indeed still has. It still sneaks in here and there. I love the moments when his big smile lights his face and he has a giggle at something cheeky he's said. Just this week I was chatting to him, and most of his answers made no sense, but he suddenly came out with "but how would you know, I could be lying couldn't I?", his grin was starting to grow and his eyes twinkle, and I said "you funny bugger dad, I don't think you'd lie to me" by which time he was laughing with tears in his eyes. It was random. He tries to be funny and a lot of times it doesn't quite make any sense now, but you can see it there and tell what he's trying to do.  The staff know it to and the ones who get it play along.  
We grew up on anything with British humour; Monty Python, The Goon show (Dads all time favourite), Faulty Towers, The Goodies, The Two Ronnies, Are You Being Served and some Carry On films. The Marx brothers and Abbot and Costello films although American were very much allowed too as dad was a big Marx bBothers fan due to the vaudevillian music and slapstick, Dean Martin and Jerry Lewis films were not liked by Dad, but we could twist his arm when they were on rainy Saturdays as the midday movies. Spike Milligan's kids books were a staple, I still think Bad Jelly the Witch is my all time favourite book, and completely influenced my humour style. Oh and who can forget Footrot Flats!
Plays on words, silly ways of saying things like a form of cockney rhyming slang were right up Dads alley; as was a bit of  good old fashioned Ocka humour - not Paul Hogan style, but Normal Gunston and the Aunty Jack show were all pretty okay in Dads eyes (anything that wasn't on commercial telly!). I guess this is just what I recall in my lifetime, I can't remember what his early comedy influences were- I remember something about Dad and Dave, but I never saw that.  Later in his life he really loved anything Shaun Micallef did, if it was intelligent political satire even better. 
Dad never had that nasty style of humour that put people down (unless it was politicians), he didn't play tricks, or try to fool you, he just liked the silliness in others, slapstick, witty satire and a good joke - and a good laugh. I don't know if he was necessarily a good joke teller but he surrounded himself in eccentric characters who were, and he'd laugh heartily - the naughtier the joke, the better. 
I seem to have gained a bit of an inability to not really "get" jokes being told to me very well, I to have to think hard about them, wondering what the punchline is going to be, and tend to be a bit gullible. I'm a bit black and white.  I can't at all get humour that puts others down, or is harmful, but visual slapstick type gags and total silliness I can understand well, and I absolutely seek out comedy for light relief from the heaviness of being a social worker.
Since dad's dementia diagnosis there has of course been some very funny moments, and while I have tried to not laugh "at him" in a cruel way, I have been able to see the funny side in things he has done and said- dad himself could up to a point. Like they time when dad was still living at home on his own reasonably well, but I was having to drive him to appointments, one of those being an appointment with his opthamologist. He was having an injection in one of his eyes for his macular degeneration, after which his eye would be a bit weepy and the drive home bright so he had to wear sunglasses. I dropped him home to his door reminding him to take his sunnies off when he got inside.  I got home and he rang me to ask if Patrick could come over and fix a fuse because none of the lights were working. After some josteling about what was and wasn't working I asked "Dad, do you still have your sunglasses on?". He indeed did still have his sunglasses on!  He had a good laugh at himself that time and we laughed about it for a couple of days. 
Sadder , but still very funny was the time he was living with me in my new house, he was sitting up dutifully at the table waiting for tea. Our little "baby", our youngest littlest cat was sitting, prim and proper, on the chair next next to dad, trying to be included at the table while inconspicuously waiting for a chance to slink onto a lap. Dad had his bottle of cheap wine and offered Patrick a glass, Patrick declined preferring a better grade of wine, Dad turned to Mochi and said in all seriousness and with no inkling he was talking to a cat "would you like a glass of wine?". Patrick and I looked at each other in slight disbelief, waiting for dad to pull a funny face or something, but he didn't....in the moment it was sort of sad, but also to witness absolute gold... I think we have dined out on that story quite a bit! 
We keep telling ourselves if we don't laugh we will cry, and I think it's actually totally okay to do both. It's vital to do both. There are a lot of tears in this journey so if the silly, nonsensical moments don't make you laugh then it's probably a sign that it's time to talk to someone. Dad would want me to have a laugh here and there I just know he would, he still tries to have a laugh himself. I can still hear the way he'd ring me and say "G'day Dorta" in his cheeky way and that's what how choose to remember him prior to dementia taking over. 
 
 

Looking after myself -Day 8

Sunday 8th Nov

I got up early and rode my bike with Patrick who rode to work this morning. I then obviously rode home (much slower) through the beautiful Canadian creek track, enjoying the changing scenery, the nature in behind the streets and houses, and greeting those out and about walking dogs, small children and just by themselves. 

One of the things a lot of people and friends advised me, was to “look after myself” once I was thrust into my caring role looking after dad with dementia.  I never really could work out how to find the time to, and I’d say "yes of course, I do yoga and I go for walks" (at that time runs). But looking after everyone else became my priority, and I slipped into finding things to dull my brain in my down times instead of exercise.  I’ve slowly been carving out time and gradually been setting up a life that is less stressful, and encompasses me and my interests. But when you want to ensure you care for someone who is so vulnerable how can you take time out, it seemed nearly impossible. When you ask family and they just say no, make excuses or turn away, what do you do. When you don't know how to ask friends, or who to ask anyway, what do you do. You just get on with it because you know you're the only one you can rely on.

In 2024 we’d toyed with the idea of extending our little house in town and keeping our town lifestyle, and after some preliminary investigating and work to do this, we recognised Herb needed support sooner rather than later and it might be easier to move him in with us, he seemed to agree at that time. I was already either taking him dinner every night or bringing him to ours, aware he was not cooking much anymore, and this gradually moved to me cooking dinner in his kitchen, while Violet and Patrick would come over and then Patrick would go home, V and  I would stay the night because I’d become increasingly worried about dad getting lost in his own home at night. Often it appeared he was just sleeping on the couch or in his armchair, not showering and definitely  unable to cook. I was worried about his gate and little trips or falls, because he wouldn’t tell me, and his complete denial of this or any memory loss was concerning. It was even more worrying that I couldn’t convince his partner who visited him every second weekend or so, from Melbourne, that dad had dementia, and it worried me on top of that, that dad would get on the train and go and visit her. Their excuses were worrying, hers likely loyally tied up in dads denial and excuses, and a growing helplessness in being unable to support him.  

I started organising everything. I became a little bossy and fell out ungracefully with dads partner while trying to advocate for and navigate his care in a way that was collaborative, but didn’t seem to land that way.  

 

2025 was a hell of a big year and on Feb 1st Patrick, Violet and I moved to a beautiful bigger house with a magnificent garden, in bush setting - something I was super excited about. Violet had started year 12 the week before and we moved over the weekend, cleaning the old house on the Sunday.

Fortunately, we had a good crew of friends around us to help us physically move and do all the heavy lifting. The exhaustion was something else, I’d never felt it before, after weeks of packing, stressing, organising, working, and looking after dad and Violet, the day of the move I crashed! Patrick and I had hired a truck to move some stuff (cough... my plants), as well as a removalist for the really big heavy things. We’d already done a load the night before – literally filled the truck twice, and my van  with my pot plants and moved these on Friday evening. Saturday the big move went reasonably smoothly with all the help, nervous animals and everything. In the afternoon, I got to a point where my body felt heavy and I couldn’t do anything more, I collapsed on my bed- not yet made, unable to move any further, my brain foggier than I’d ever felt. I woke up an hour later to a familiar smell of my dogs wee and realised she’d got so anxious and being locked in our bedroom with all the comotion, at some point through the day had peed on my blanket I had fallen asleep on. I was too tired to even care or manage doing anything about it- I fell back to sleep.I was tired on a level I had never felt. That seemed to be the start of my tiredness, and I haven’t really been able to shake it since. A combination of doing too much before and since, coupled with perimenopause, plus no time to be active or eat healthy. My body worn out and simple daily tasks exhausted me for ages.

2025 was a wreck from that moment on, Dad didn’t really want to move in, and the best I could do was pick him up every night after work and bring him home for dinner and to sleep in my spare room.  I’d give him breakfast the next morning and take him home again for the day, ensuring he was going to be safe for the day.  I’d organised someone to call in on him every single day, and I even went to his at lunchtimes to ensure he ate his lunch, then I’d pick him up in the evening and do it all over again. Dad not knowing the time anymore would “have a glass on wine”, but maybe a few times a day, and be rather tipsy when I picked him up, which made me angry and upset.  It drove me insane, I was unhappy, I was stressed I was at my wits end. Violet was doing year 12 and I wanted to manage her health and wellbeing which was suffering, we were trying to get her ADHD diagnosis finalised and her onto medication, which happened somehow, but then caused her a major health issue that I had to manage later during the year, this turned into a year long challenge in itself. I was finding work no longer rewarding due to some dynamics going on, I was finding a staff member I had to work closely with really hard to deal with, and it was a confusing time as she was friendly but undermining, like a smiling assassin. She would be supportive about my personal life one moment but condescending the next subtly ensuring I knew she was much better qualified and experienced for our work (she wasn’t), and that she was actually in fact going through a lot more stress (she was going through a lot also, but somehow managed to make everything about her).   

Our new house then got major plumbing issues and it cost us a fortune, due to this we lost the use of our ensuite – a first world problem but  this undid me. I couldn’t manage any more responsibilities so I delegated this one for Patrick to manage, and deal with insurance companies while I navigated Dads life, my aged care, family dynamics, Violet,  my failing health, and looking into homes for Dad. He finally went into respite in about June 2025. I have never felt so broken as that day.

I drove him there, walked him in reminding him he was just there for a fortnight (he wasn't), the Dr’s had convinced him it was for my benefit and he somehow agreed he’d do it for this reason only. I took some of his things in that would help him feel it was a familiar space, and set him up, when I went to leave he hugged me saying he didn’t want to do this, tears in his eyes. I left and made it a short way home before I had to pullover sobbing harder than I ever thought was possible. Heart and gut-wrenching sobs, my mind swirling with guilt, empathy, deep sadness, anger, a sense that I had betrayed Dad, and relief all mixed in. 

I had wanted to spend this year focused on my daughter doing year 12- I'd literally worked hard to set it up to do this and I was angry at him for taking this focus away from me, but so empathetic towards his vulnerability, and grateful for being the dad I needed all my life. I cried every time I spoke to someone for months after this.  It was my private supervisor at that time that recognised my burnout and urged me to take time off, or reduce my hours. It took me a couple of months to get around to taking the time off, and can you believe the day I decided to approach HR and ask them, my colleague previously mentioned, sat our small team down and “announced’ she was taking time off to manage her stressful life. I still talked to HR, actually sobbed and bawled to HR, as I hadn't responded very well to my colleague and felt guilty for my rudeness to her. HR were understanding, as I'd been talking to them for a while, I was able to take the time too.   

I used that time to clean out dads house, and try to make sense of paper work (a whole other kettle of fish).  I also ate a lot of Kitteltys cinnamon rolls!  I somehow managed to swipe the side of my van costing me a lot and a couple of months without it, and also ended up having investigative surgery due to stress on my body (nothing too serious). Being this burned out I slowly recognised I needed to change things; jobs, slow down, and work less.

My voice is still shaky  from this time, as I was a literal mess. I work a better job with more supportive colleagues, I work part time and I am doing a horticulture course because I love gardening. Naturally I am getting more time in the garden but still not that much. This challenge is giving me back my health I hope, and motivating me to exercise again. Dads house is rented out and Mums house went on the market this week so that  will be a relief. In those times when it felt like nothing would ever change, I kept telling myself they would, these hard times don't stay like this, I was right. Even though I should have done this earlier, I might actually have a bit more time for me now!


Rainy days - Day 7

Saturday 7th Nov
Patrick joined me for today’s walk and it was fortunate I waited until we both had a moment together to do the walk as it rained today, it hailed today and then the sun shone today. We managed to grab the sunshine for most of the walk. I enjoyed showing off  my new 5 K routes around the Uni to Patrick, pointing out all my observations I’ve noticed along the way. We discussed things we noticed, things that have happened throughout our day, and the last couple of days, along with possibilities of future plans. We don’t often get a chance to catch up for long these days, often being like the proverbial ships in the night, or zombied on the couch in the evening, exhausted from our day.
Patrick has been amazing support through this journey with Dad, then Mum, his can do, practical nature has been invaluable in a time when I have been honestly exhausted physically and emotionally. 
Dads life and lifestyle wasn’t  set up or at all prepared for another person to come in and pack it up. His resistance to going into a home, and denial of his disease was completely tied up in his inability to separate himself from his house: his belongings, his loves, his interests- his life.   He wasn’t at all prepared or ready. I hadn’t realised until organising its clean up just what a “collector “ Dad had been and why it would be so hard for him to let go. I knew he collected records and had hundreds of 78’s, mostly trad jazz, but hadn’t ever noticed the hundreds more in his shed in crates, and the hundreds of LP’s lining his shed walls. I’d been in that “mad scientist“ shed heaps of times, and somehow while manoeuvring through the tall cupboards and stacked bookcases I’d never really considered or taken much notice of the contents. Opposite the “shed things” were books, papers, magazines, old  stereos and radios - and not just a few old radios, we’re talking  one of each type from each generation since the 1920’s kind of scenario. I’m not even exaggerating. Most of it organised in Dads odd cataloguing sort of way, but chaotic in its amount.  I’d certainly never pondered that I might need to clean all this up someday.
I remember cleaning out the house, and trying to just go cupboard by cupboard, draw by draw, bookcase by bookcase and just try not to get overwhelmed. I’d taken 4 weeks unpaid leave off work that turned into 6 due to holidays, and o went to Dads and worked every day like it was my job. I got through 3 weeks of emptying his house with bits of practical help from my siblings, and opened the shed only to realise there was the same again, if not more. I wanted to cry. I probably did. I know I did a lot of sitting on the dusty floor overwhelmed with what lay ahead.
Dad tried desperately to convince me he had a good 15 more years left in this house and it was and will always be the hardest thing I’ve ever gone through to firstly having to convince myself I was right and he couldn’t look after himself anymore, nor could I look after him, even though we tried to move him in. Then trying to convince myself that I was doing the right thing by him.  Then try to convince him. Every step of that was like going to war. Through out all this I had the support of Patrick who listened to me and supported my thoughts and never made me feel like I was wrong or my decisions were bad, he would listen and not judge or question me. I strangely had the support of my siblings in this area too, where I expected resistance they trusted my judgments and agreed with my decisions. 
I still had to make the decisions. 
It was exhausting, it was confusing, it was lonely and it was utterly heartbreaking. 
I’ll be honest that there was a time, and maybe even times Patrick lost me. It made everything feel like I was wading through mud. The times he wasn’t there, the times he didn’t understand the importance of what I was feeling nor  on the many levels I was feeling it, and the times his actions were nothing short of selfish. But somehow we got there. I communicated best I could with what little I had in me. He listened, he took time and pondered, he did the work, he tried, over time he wavered in and out and he came back (metaphorically). He always showed up for me in practical ways when he couldn’t emotionally. He did a lot of heavy shlepping at Dads house, he seemed to come in and do the big jobs just when I was ready to give up, and that encouraged me to keep going. He mowed lawns without hesitation or being asked, he massaged my feet in the evenings in an attempt to connect and help me decompress, he bought me chai tea when I was stuck cleaning, and chamomile tea before I would exhaustingly fall into bed, he drove to the shops if I forgot something, he looked for my misplaced car keys/ phone/ glasses when I absentmindedly put them out of sight, and he just did stuff. There were times if I had the energy and time I thought I could have just left him, but there were many more times that he was one of the very few people who showed up for me, over and over and over again. He was definitely the most reliable. 
Then came Mums house and we had to do it all over again but by this time we had a rhythm, we now knew the steps to the dance we were dancing together, we still had no name for it, but we could do it without tripping each other up. Mums house is a duplex, small and tidy, very much “downsized” about 10 years ago. Patrick continued to just mow lawns, dig holes, fix things, paint, scrub and mop and find my misplaced items without any prompting or complaint. It was again invaluable.
It’s felt important to have him be part of this challenge at times because he’s been part of the most challenging time of my life, and somehow our marriage has survived that. 

Beards- Day 6

Friday 6th Nov

Seems a strange topic for todays blog but bear with me, or as Patrick, my witty husband, would say… beard with me… 

I was up pretty early this morning and decided to walk in the direction of the sunrise, it was stunning. On the way today I was listening to a podcast, I often walk in silence so I can think and reflect while listening to the birds but sometimes a podcast is so interesting I just want to listen. I go to sleep listening to “The Rest is History” podcast. Tom and Dominic have beautiful voices with lovely British accents, they talk about the broadest range of topics throughout history, and I love it. They never talk over each other, are politely jokey with each other, kind and just plain knowledgeable and interesting.

The topic I awoke to and continued to listen to while walking this morning was called the War on Beards. It was essentially a history of the beard, and was oddly fascinating. Naturally it got me thinking about Herb and his beard. 

I have never known my Dad without a beard. Herb had a beard from about the age of 20, and when asked why he wouldn’t shave it off just for fun by my curious young self, I’m sure the once confessed to me it was because he had quite a pock marked face from an embarrassing amount of acne as an awkward teen.

His beard matched the fashions, in the 60’s it was suitably neatly cropped and dark, matching his skivvied  beat-nick look; in the 70’s longer and wild to go perfectly with his flared trousers and want to be fringe dwelling farming/ musician lifestyle; in the 80’s it was a sensible teacher/ dad kind of beard, neither long,  nor was it shortly cropped, but full, neat and a serious beard.I’m sure no-one else's Dad, that I knew, had a beard so it was distinctive. 

In more recent and later years prior to his dementia diagnosis, he had gone back to a reasonably closely clipped style, sometimes super close which was odd with his translucent grey hair, I could now almost imagine what Herb looked like with no beard. He looked very much like his late brother Malcom who didn’t have the beard but a healthy moustache (in my memory anyway). 

Now that dad has dementia he doesn’t think too much about grooming, haircuts and beard trims just don’t factor in his thoughts. Dad had loved a cheap barber, although in recent years had taken to just clipping or getting his partner to cut his hair using clippers. It just isn’t on his radar now, so I have to keep on top of it. 

We tried the hairdresser at the home but with results we weren’t keen on. I’d taken over the clipper and shaver before he moved in so I have just kept doing it. Lately though he resists a beard trim. Sometimes he tells me he’s growing it, and the other day showed me a length he was aiming for I’d never seen on him, ever - think a classy santa! He won’t let the staff trim it and says “Anni does that”, and then I come in to do it and he refuses. I get to a point now where his food is so stuck in his moustache that I insist on a trim and just do it anyway. I can sometimes convince him I’m cutting his hair and just “tidying “ the beard and other days I have to just get bossy and jokingly tell him “remember I’m the bossy daughter” and just do it. It’s an oddly familiar intimate thing cutting Dads hair and beard, a strangely close but honourable thing to do. I like these moments where he sits in silent concentration slowly moving his cheeks around, lifting his head, tilting to one side, while I am in silent focus symbiotically trying to ensure evenness. It’s  a moment just for us. I’m helping him, and he’s accepting it. He’s vulnerable, but he’s still my father. I know it’s a time limited task, and while it’s an odd moment, it’s a moment I can spend being truly in the moment with him. 

Visiting Dad- Day 5

Thursday 5th Nov

I went to visit Dad yesterday, I do most days, I finish work at 4:30 and get to the nursing home in time to help set him up for tea at 5. Or chat to him while he has tea. I’m giving myself breaks from this lately as I used to turn myself inside out ensuring I was there every single day at a mealtime. 

When he first moved in to the home he refused to eat at the dinner table, and because he has trouble seeing; with dexterity;  and just doesn’t want to eat in general, I saw it as my duty to ensure he was sitting up in his chair with his favourite tv station on, his food was cut up, and he would eat some if it. Over time he has stopped resisting things like eating in the dining room, which while I know makes life easier for staff, I feel sad about this change in him. I can see some of the things Herb resists are due to his dementia- like personal hygiene, it’s apparently a common trait to refuse showers and Herb was always a very clean and well presented person - but refusing to eat in the dining room I can see as a “Herb” thing not a dementia thing and it feels sad that these parts of his personality are disappearing. 

Herb was very social, but only to a point, he actually much preferred to be solitary, or at home with his partner, and if around others he only really tolerated others with similar interests and views to him. He didn’t like the ordinary much, he wasn’t into the footy, or anything remotely commercial, in fact he shunned these things and couldn’t really see the point in engaging in conversation about things that didn’t interest him - politely of course. To Dad the dining room was filled with “those kind of people”, I mean it’s not, and if Dad and they didn’t have dementia he’d have found some kindred and beautiful souls. He certainly has made “friends” with a few, but for the most part the dining room and lounge make him upset and grumpy, he does everything to avoid them. 

So last night I walked right past him sitting in the dining room and went to his room to find it empty, after a bit of a look around I found him sitting at the end of the table like he was holding court, sipping his wine and looking around. I could tell he was in a bit of a grump and worried. One of his fellow residents, Max, who often calls in to say hi to Dad and always comes to say hi to me and have a little chat, was also a little worried. He and Dad were indignantly fixated on why they couldn’t get a beer instead of wine and seemed to think it was ridiculous, Max was quite worked up about it and advocating Herb have a beer! I did a bit of my reassurance and lots of reflection with humour particularly since there was no beer and they both had wine, and they eventually seemed to stop worrying about it. But Herb was in a bad mood now and wouldn’t eat. When the food was in front of him he’d either indignantly tell the staff he wasn’t eating it or smile sarcastically and say “that looks nice” and the to me “I’m not eating this”, and continually tried to give it to me. I kept redirecting it back to him and asking him to have something to eat, his loss of weight upsets me and I try to ensure he is eating. The staff and the food are good I have to add, it’s just Dads refusal to eat anything or much of it, he’ll always say it’s awful food but honestly the quality is pretty good for an aged care home. 

Anyway I’d been there for a while chatting with the other residents next to me, two of who can hold reasonably decent conversations, and with Dad, while also advocating for Dad with my probably least favourite staff member ( they’re all amazing but there’s just one that rubs Dad and I the wrong way). Dad got pretty angry at my attempts to feed him (I sometimes have to physically feed him) and started to mutter angrily at me through gritted teeth “I’m the boss here” “don’t tell me what to do” and things like that. He’s not often like that and I know it’s the disease and his frustration talking, most of the time I can handle these moods - not that they are often- but I wasn’t feeling great so I just gave him my usual gentle squeeze of his hand and said “I’ll see you tomorrow Dad”. I felt guilty but only yesterday he was pleased to see me and have me around, he was joking with me in that cheeky way he does, with tears in his eyes when he laughs, partly through over emotion and from laughing. His emotions are exaggerated now, and they are what he runs on.  I can rationalise his change in moods but some days it’s just harder than others. 

Herb can’t make sense of the world anymore and he can’t communicate with words properly but he feels his way through the world through emotion. Dad is a great person but did always have an air of authority, not in a scary way, but dare I say it in more of the entitled arrogant way of his generation, and coupled with his good nature he was never frightening and never ever mean. Herb knew what he wanted and Herb was pretty black and white about things. Before his dementia if this annoyed me rather than argue with him I’d just walk away my boundaries set, so I guess that’s what I was still doing. It just felt like a betrayal that I could walk away and not have to deal with him and he was stuck here, in the home feeling pretty helpless. I like visiting Dad, and I know he is well cared for. I want to still spend time with him while I can but I am acutely aware I can choose to just walk away, and not to visit, and he is still there pretty vulnerable in my eyes. 

The drizzle -Day 4

Wednesday 4th Nov
It was an amazing sunrise this morning, I was contemplating walking in the afternoon but with the glorious colours of the sunrise out of my bathroom window it enticed me out early. Lucky too, being Ballarat the weather changed later in the day and it drizzled, rained and then poured, going back to drizzle. I would have been fine by evening but it would not have been as pleasant as this morning. 
While walking I was naturally reflecting again on just that...walking, and exercise and the health benefits of it.I've mentioned before I have always gone on walks, I've loved hiking, and just walking for fun.  I follow a lot of dementia pages and accounts to do with people's journey of dementia and a topic that always pops up is ways to reduce your risk of dementia. Being active is naturally one of those, as is a good mediterranean style diet, reducing alcohol intake, managing health issues such as high blood pressure and diabetes, not smoking, staying socially active, challenging your brain, listening to music etc, etc. I know these are only reducing the risk, and not a fool proof way of ensuring you don't get it, but sometimes one of these things will pop up on it's own and I think.. well Dad and Mum did this and it didn't help them.  That said they both smoked heavily in the 80's, my Mum still smokes unfortunately, and they have both always enjoyed their regular glass of red wine (or two...) back in the day. They loved a bit of a get together, and dad being a muso, well the wine and beer flowed easily. Dad was a bit of a "collector" of wine and enjoyed visiting vineyards to find a good drop that was a bargain. Herb loved a bargain.  Dad had quite the collection of wine when we cleared out his house. It's the one thing he still gets to enjoy, a glass of wine with his tea, and maybe one at lunch, 17 months later and he's only just come to the end of his collection of wines! I'm not going to take it away form him now, he looks forward to it and he doesn't have much to enjoy anymore. 
It could have been the drinking that contributed to Mum and dads dementia, I don't know. I don't drink, but I did and I loved a wine or two as well. I've been through plenty of health kicks where I'd give up for 6 months, and once I hit peri-menopause my body rejected it all together and I don't even bother any more, nor do i miss it. If my body tolerates it again I don't think I'll bother, and the added bonus is that I guess I'm helping my brain a lot. 
One thing both my parents also have is macular degeneration, to a point Mum is legally blind and Dad isn't far behind, and dad has significant hearing loss to boot, so life is pretty miserable for him. I have read these are big contributors to dementia also. It really must be awful to be experiencing. I often think it's awful to watch but I imagine it's scary and awful to experience, but how can you know you'll end up with it. My parents had good lives and enjoyed themselves, they didn't have the education we have now about these things and both just didn't ever think they'd get dementia.

Melbourne Cup Day - Day 3

Tuesday 3rd Nov
It's a public holiday today for Melbourne Cup day, so another nice slow meander around the neighbourhood, this time a different part of the bush, around the stunning setting of our University. Studying there last millennium, and helping out when dad ran The Eureka Jazz Festival there, I had taken these surrounds for granted.
Growing up Dad's band always played at the Ballarat cup, so I frequented it most years for many years, mostly because i could get in for free, I could dress up (I do love to dress up), and day drink. While I did ride horses as a teen I wasn't really a horsey person, it's just that everyone else was and so riding was a way to stay connected and not be left out socially, living in the bush where everyone was horse mad.  I love animals full stop, and these days I think more about the cruelty towards the horses, so I'm not the biggest fan of the cup. Growing up on the farm I became a vegetarian early, and have been most of my life, I love animals too much to eat them- that's just me. 
With Dad being a musician this meant I could go to all sorts of gigs as well as his yearly cup gig, and I loved to. Herb is a Jazz musician and composer, he played the trombone and was the leader and manager of his band The Golden City Jazz Band (also known as the Golden City 6, and The Golden City 7). I always thought my dad was a celebrity when I grew up because where ever we went everyone knew who he was. Herb was often in the local paper, or playing on the local TV station, and his band was even in a local advert on the telly! He knew everyone, and everyone knew him, even when I wasn't with my dad people would say "are you Herb Jennings's daughter?  I know him.. I used to listen to his band on a Sunday"... or .. "he played at the dances I used to go to"..."he played at my wedding"... or even "he taught me" ... or something similar. To be honest, it still happens maybe not as much these days, but even when he first moved into a care home the manager said to me he couldn't believe he had "Herb Jennings" there as Dad had played at his wedding years ago.  Being from a small country "area" in the 80's, I just assumed my dad was as famous as Louis Armstrong, Dads favourite Jazz musician. 
The perks of going along to the bands gigs were making friends with the other musicians kids; exploring the corridors and hidden rooms of the old pubs they band played in; having a glass of sugary lemonade and sneaky sips of dads beer; and being mostly ignored by the adults, as a teenager this was even better! I personally loved the music, and continued to follow dad to gigs and the annual Australian Jazz Convention as much as I could as a teenager and even young adult, when my siblings had long disconnected to the music and sworn they hated it. The atmosphere of the music was great: jovial, happy and it seemed to always put everyone in a good mood. I never saw fights break out; everyone laughed, danced and sang along, they always seemed deep in conversations when the music wasn't being played, elegantly chain smoking and drinking Fosters or a riesling (it was the 80's); and these were adults I always felt safe around. If I want to cheer up I still put on Jazz, I mean a play it anyway, but it's definitely a good cure for the blues.
Dad started playing trumpet in a brass band in his teens with his brother Malcom and his father Bert. I wish I knew more about this, as I just patch together the stories from photo's and memories of conversations with Dad. I'm pretty sure dad told me he first got into jazz when he and some friends (or maybe he was with his brother, I can't recall) came across Dick Curnow, a local mechanic, playing some old 78's out the back of his garage, down an old cobblestoned alley way in central Ballarat one evening. Dad could even recall who the band and what song was playing, but I can't. They started talking about the music, and Dick invited them to a glass or two of beer and an evening of jazz records, puns, word play and singing naughty and silly ditties. They remained lifelong friends, and dad was hooked on trad Jazz. I could be wrong but that's how I romanticise dads story. 
I often try to record dads verbal stories on my phone now, and I do have a bit of his writing tucked away somewhere for when I have time to read it. When he went into the home he kept saying he just wasn't ready, that he really wanted to write his life story down, he had too much to do. It was heartbreaking that I didn't have the time to manage help do this for him, and there was no-one else who could. He didn't trust anyone else other than my sister anyway. He had it in his head that she would dictate his story, but she really didn't have the capacity at that time either. I keep telling myself I'll try and piece together some remnants of the stories I know, because dad really and truely had an interesting life- through my eyes anyway. 
I suppose in some ways thats what this blog is, it's reflecting on his life, and mine as a result. But also the sadness that he is lost to dementia and now all that amazing knowledge and experiences are disappearing.
So yes cup day isn't about horses for me, but it does remind me of watching Dad and his band all dressed in matching shirts and ties wearing boater hats (reserved only for these type of gigs) do the "roaming band" thing at the Ballarat cup, and having a ball doing it. 

Looking back and appreciating the small things- Day 2

Monday 2nd Nov
Today I completed a walk through my neighbourhood, I'm so lucky to live near a lot of natural bush, but I wouldn't have it any other way!  It was stunning walking through the bush just prior to it raining, the sun still trying to shine but the clouds dark and heavy while I  appreciated the native flowers and bird life. I was so lucky to have grown up in the bush not far from where I live now and this walk had me reflect a lot on that and the lifestyle my parents gave us: myself, my brother and sister. It was obviously a choice of my parents to move to the bush when my siblings and I were only small, I guess I was probably only about 2 or 3, so I didn't know anything different, the bush was my life. They were young and had a vision of running a self sufficient farm - true hippies in the 70's!  They had a shared vision to not have to "work for the man", although in the end  they still always had to rely on their careers to bring us up, eventually the farm slowly dissolved, along with their marriage, after about 15/20 years.  They remained friends over the years, and it's sad they now both have dementia.
Sadly not only does Dad have mixed dementia, but Mum has  been recently diagnosed with Alzheimers and is at a moderate stage. Her journey hasn't been any where near as stressful for us as Dads, but the journey with Helen has certainly still had it's challenges, and naturally a lot of grief, although I'll admit the grief  hasn't hit me as hard as it did with dad. I was thinking this morning that women are more compliant in some ways, it's just how we've been socialised, my Mum was fiercely independent and incredibly capable meaning it was a struggle for her to make the change in lifestyle and agree to go into care. To be honest she still denies the dementia diagnosis and in the end it was a  fractured back that slowed her down and made her resign to the idea of care, but with her making a choice it was a much smoother transition for her than it was for dad.  After a couple of weeks of multiple admissions and discharges in hospital, she just one day agreed with us and the Doctors that living alone wasn't that easy any more, and she got to a stage where she was happy to "get rid of the house" and live in her new surroundings, a lovely care home not too far away from all three of us.
 
I honestly love my walks through the bush and as I walked this morning I realised I have been doing this since I was quite small. Growing up in the 70's and 80's I was fortunate to be of that era when parents wanted you out of their hair and so told you to just go and explore, as long as you were back before tea (or in our case in time to help feed the animals). Living on a small hobby farm outside of Ballarat we'd been warned multiple times about looking out for snakes, red backs and mineshafts, as well as old hay stacks and things like that, but otherwise we were free to roam, and roam we did, the bush was our backyard and we knew every inch!  When we were small Mum and Dad had taken us on plenty of walks through the bush, around the tracks and exploring old sites where old miners cottages had once been. They were the most fun, with the old remnants of garden roses and old hedges somehow surviving without human touch and  showing where the fences once went to. Finding bits of broken crockery buried like treasure just increased our appetite to explore more and more.  My maternal Grandparents lived about kilometre or two through this bush area, and from about 8 or 9, my sister and I were given a free run to do the walk through the bush ourselves to go visit them like modern day red riding hoods, I still remember the first time we did this. We got stuck at one dirt track intersection, very white hard compacted clay soil showing the worn track one way, and a more dusty dirty brown track covered in gum leaves the other, my sister and I couldn't quite remember which track Mum and Dad usually took and loudly arguing our disagreement about which way to go we got the attention of our lovely neighbours who lived not too far away from this spot through the bush, and could hear our commotion, so they called Mum. I can't recall now who was right, and if Mum came to show us, or if we indeed just turned back crying and yelling at each other the whole way back home, I think probably the later. Mum or Dad  likely walked us back to this dusty intersection again, and marked the way for us to remember in future. And then we were off, the bush was ours, once we knew the way that bush became our playground, and Grandma and Grandpa had frequent weekend visits from us.  By the time we were teenagers riding horses through it, we knew every track by heart, every bend, and hill, and tree, we knew short cuts, made new tracks and went "off track" as often as possible. Our grandparents house became the destination for sustenance and to refuel us and the horses, then off we'd go again.
While we explored my parents just got on with things I suspect;  they built us a big amazing house out of stone that had doors and windows form an old church; they ran a piggery and a small hobby farm of sheep and cows, and gave us whatever pet we were into at the time (my favourite was a peacock). Mum still worked as a nurse in the evenings until she hurt her back; and Dad as an emergency teacher, and musician. We were expected to help a lot, but in between pig feeding time (every morning and every afternoon) and if we weren’t at school we were free to explore, play and roam. It was a great way to grow up, and today I've been contemplating so much of what they gave us and truely appreciating even the scent of the bush because today it smelt like the sweet spring grass and gum leaves that I remember, and I can't imagine any other way of growing up. 
I also wonder though with such a healthy lifestyle how did they both end up with dementia?

The current state of things - Day 1

Sunday 1st Nov
Day one of the challenge, luckily it's a Sunday, I'm a bit out of condition despite having trained a bit over the last month! I'll put this down to the inactivity over the last two years caring for and sorting out Dads life (and then Mums), as well as  a couple of health challenges that have cropped up for me at the same time. This is why I'm keen to do the challenge, it not only raises money for a great cause, but it will help me personally to get back into shape - I hope!
Today Patrick has agreed to come with me and we decided to start with a ride of 5k's. We live in Mt Helen, a very hilly, leafy suburb so we recently bought "peddle assist" bikes. I did tell someone recently I was going to use my E-bike in the challenge and they suggested that was cheating. However when you live in a very hilly suburb I think an e-bike is a life saver! It doesn't ride for you, it just assists you to manage the hills more easily- just what I need! Anyway for that reason I rode just over 8k's as when you think about it with all the "up hill", is "down hill" and this means a lot of rolling - so I figure we did about 5 k of "riding" when you considered the moments we got a break while rolling down hill. The extra K's and steep "up hills" made up for those down hills where we just rolled!
Dads dementia journey has really taken up most of my spare time over the last 2 years for various reasons, there's a lot to sort through, to work out, a lot of appointments, a lot of packing up, and lot of caring, and I just wanted to spend a lot of time with him because I know his dementia is progressing quickly and we are losing him before our eyes. This has meant my own hobbies and exercise routine went out the window. I do try to visit Dad most days after work, when normally I would have gone for a walk or done some yoga, however recently I've taken to having a day or two off visiting him, and trying not to feel guilty about this. I've lost my drive for yoga, running and walking, but they are so vital for my health and wellbeing- and well the point of doing this "active" challenge is that exercise helps reduce the risk of dementia. 
Currently Herb still knows me and most people, I feel lucky for this. He is slowly starting to forget our names and sometimes forgets certain people, or doesn't recognise us and mixes us up, but he always seems to know me, and be happy to see me.  However he is losing his ability to speak and make sense, he struggles to get words out, his sentences don't make much sense any more, and now sometimes the words are a bit of gobbledygook. I can still usually work out what he's saying. He is struggling to walk, as he has Lewy body dementia with Parkinson's and so his gate and shuffle are quite a problem, he has a lot of falls because his body stiffens up when walking, and his legs just stop working. His brain can't connect to his legs and they just won't do what they're meant to do anymore, he finds it very frustrating. If you remind him to lift his knees he walks for a bit like a thunderbird puppet and can get around quite quickly, but it's pretty spasmodic, sadly. The Lewy bodys also has increased his anxiety, which means he is constantly stuck in a state of worry and concern about everything, so conversations are a repeat of gentle reassurance and redirection. It's quite sad to experience for someone who was more interested in talking about politics, literature and music. Dad is on minimal medications, but one of them is to manage his anxiety and this just makes life a little easier for him and those around him, he's marginally happier, and we have some good laughs, his cheekiness is still there in between the worry. Naturally with all of this and his age there are physical issues and ailments on top of, and because of his dementia. 
Life for dad is confusing and naturally he often wants to just "go home", although this has decreased a lot recently as his memory declines. It feels cruel to leave him "in a home" but even if I had the time, I just don't think I could physically look after him, the amount of issues he now has are just too tricky to manage on one's own. I've been lucky to find a lovely home for him, with supportive staff and an amazing clinical care coordinator.  I'm a strong advocate for him while he's there, but they never treat me like a problem, and they are always willing to listen to me and help Dad, so it really is like a community, and this is what we all need, particularly when managing a difficult disease like dementia. Community is important, wellbeing is important. Being active is important. ❤️

Beginning

Saturday 3rd Oct
In 2022 I started to notice some worrying changes in my Dad. And actually the profile picture here is around the time it was starting to become more obvious to me. Herb had always been an incredibly independent man. A doer. A musician, and a lover of life. He lived a great life doing what he loved; playing and enjoying music, traveling, reading, watching good films and enjoying the arts. This is a very thin overview of Dad’s life, but the subtle and not so subtle changes in Dad quickly took all these from him. He was loosing vision and diagnosed with macular degeneration, and I then fought hard through disbelief and a lot of resistance to look into a dementia diagnosis. This was a long and difficult journey, mostly due to a broken medical system, and he wasn’t diagnosed properly until 2025, and by that time he needed nursing care. He was diagnosed with a mixed dementia which included Lewy Body dementia, alzheimers and vascular dementia. I tried to look after Dad at home but with such a significant and rapid decline, plus a child going through her final year of high school, and myself going through peri menopause it proved too much and Dad heartbreakingly moved to care. 
It’s been a hard time to continue with my own journey of activity and health so what better way to get re- motivated to exercise (I am usually a very fit and active person) than raise money for a cause that is close to my heart! 

Thank you for your gift

$106.75

Kim Wild-fyfe

Well done on doing your bit for the cause. Its a horible disease for everyone, and sonetimes worsr for the family watching. Always happy to chat if you need it, havibg been through it all as well.

$55

Anira Koelle

$34.40

Juelz

Well done Anni

$33.68

Alasdair Wardle

Great effort.

$61.36

Martin And Vicki

Hope there are many happy memories to reflect on while you do your daily walks.Be kind to yourself while you journey with your parents through a very difficult challenge.

$34.40

Deb Harris

U r amazing. Let me know if u need a walking buddy some time xx

$34.40

Katrina, David & Obi

Keep up the good work!!

$23.81

Kate Souter

Very best wishes Anni. Your dad’s lucky to have your care and support and you’re lucky to have had his. A beautiful gesture of love with bonus fitness

$34.40

Sam Fraser

$55.95

Vikki Holford

$34.40

Penny W And Shirls

Much love to you Anni x

$34.40

Alison Bingham

Good luck Anni

$34.40

Belinda Coates

good luck Anni! x

$55.95

Rebecca Norris

$34.40

Patrick

X

$61.36

Joanne Smith

$34.40

Anni Jennings